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Category: Data Hosting FacilitiesThe unique opportunities and contacts available to the NoE provide an opportunity to integrate disparate resources and thereby cultivate an environment of data exchange. This section lists sources for VPH-related data, as well as services allowing researchers to store and share their data. Users of such services should be aware of responsibilities relating to data protection, copyright protection etc. - these are designed to safeguard the rights of individuals and the interests of the wider population. The sharing of clinical data presents particular challenges, the most immediate of which are those of ethics/consent, confidence and demonstrable best practice. At the very least, the clinical community must have confidence in the infrastructure that is used for exposing clinical data. It needs to be convinced that security is adequate, that anonymisation is properly implemented and that authorization processes effectively restrict access to only those permitted to access the data. An infrastructure that supports integration of clinical, industrial and research data is a primary goal of the VPH, and links to technologies that complement and support data hosting activities also feature in this section. |
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